{"id":776,"date":"2017-03-30T14:49:03","date_gmt":"2017-03-30T14:49:03","guid":{"rendered":"http:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/?p=776"},"modified":"2022-04-13T13:59:11","modified_gmt":"2022-04-13T13:59:11","slug":"too-much-information-world-autism-awareness-week","status":"publish","type":"post","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/too-much-information-world-autism-awareness-week\/","title":{"rendered":"Too Much Information: World Autism Awareness Week"},"content":{"rendered":"

Background<\/h2>\n

This week (March 27th<\/sup>\u00a0– 2nd<\/sup> April 2017) is World Autism Awareness Week. Claire Johnson<\/a> (Head of Quality Assurance and Regulatory Affairs\u2013 Centre for Trials Research at\u00a0Cardiff University) gave a very personal presentation to Centre for Trials Research colleagues on autism based on the Too Much Information<\/em> film by the National Autistic Society. The film aims to help people gain a deeper understanding of autism, focusing on the fact that for some autistic people the world can feel like a terrifying place with overwhelming sights, sounds and feelings.<\/p>\n

Autism is part of daily life for around 700,000 people in the UK, it is a lifelong developmental disability affecting girls and boys that impacts how they see the world and interact with others. \u00a0The way in which autism affects each person is very individual.<\/p>\n

Autism as a sphere<\/h2>\n

Traditionally there has been a \u201chigh functioning\/ low functioning\u201d linear way of describing the autistic spectrum, but this way of thinking is changing, as Claire explained, autism is now being viewed as a sphere, with every individual\u2019s skills and challenges mixed together inside it. Thinking of it this way makes sense, it means that just because an autistic person has challenges it doesn\u2019t mean that they don\u2019t also have strengths \u2013 the spectrum of autism is individual and variable and can move around within the sphere.<\/p>\n

As part of the presentation we were asked to reflect on how we communicate and think about autism. Could we be more aware of the day to day difficulties faced by a person with autism? How could we change our own behaviours, routines or environments to help? How could we help the parent whose child is having a meltdown in the middle of the shop? Could we give the person with autism a little more time to process the information? Could we stop and think about the perspective of the person with autism a little more?<\/p>\n

Autistic people and their families face very real difficulties. Claire outlined the importance of accepting these difficulties, but also equally important is that we become more able to recognise and support individuals and their families without promoting the exclusion or stigmatisation of autistic people.<\/p>\n

SenITA study<\/h2>\n

The Centre for Trials Research is currently in the set up phase of the SenITA study, a pragmatic randomised controlled trial of sensory integration therapy versus usual care for sensory processing difficulties in autism spectrum disorder in children<\/a>, and its impact on behavioural difficulties, adaptive skills and socialisation.<\/p>\n

Further information<\/h2>\n

In her spare time Claire can be found volunteering for the Cardiff and Vale Branch of The National Autistic Society. If you are interested in learning more about autism or you are interested in fundraising for the NAS Cardiff and Vale Branch you can contact nascardiff@nas.org.uk.<\/p>\n

The National Autistic Society Cardiff and the Vale Branch website<\/a> provides useful help and resources.<\/p>\n

Local events and other useful information\/links can be found on the NAS Cardiff and the Vale Branch Facebook page<\/a>.<\/p>\n

\u201cAutism does not define a person, but it can explain some behaviours\u201d <\/em><\/strong>\u2013 Claire Johnson<\/p><\/blockquote>\n","protected":false},"excerpt":{"rendered":"Background This week (March 27th\u00a0- 2nd April 2017) is World Autism Awareness Week. Claire Johnson (Head of Quality Assurance and Regulatory Affairs\u2013 Centre for Trials Research at\u00a0Cardiff University) gave a […]","protected":false},"author":1248,"featured_media":777,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[7],"tags":[40,41],"class_list":["post-776","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","tag-autism","tag-presentation"],"jetpack_publicize_connections":[],"jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p7dIou-cw","jetpack-related-posts":[{"id":2209,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/world-autism-awareness-2022\/","url_meta":{"origin":776,"position":0},"title":"World Autism Awareness 2022","author":"Claire Johnson","date":"March 29, 2022","format":false,"excerpt":"This year, World Autism Awareness Week is from 28 March to 3 April, and to mark this we\u2019d like to provide some information and further resources linked to the Centre\u2019s protected characteristic theme for 2021\/2022 \u201cAge\u201d. - Joint blog by Claire Johnson, Head of Quality Assurance and Regulatory Affairs and\u2026","rel":"","context":"In "Events"","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/03\/pexels-tara-winstead-8378752-scaled.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/03\/pexels-tara-winstead-8378752-scaled.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/03\/pexels-tara-winstead-8378752-scaled.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/03\/pexels-tara-winstead-8378752-scaled.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/03\/pexels-tara-winstead-8378752-scaled.jpg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/03\/pexels-tara-winstead-8378752-scaled.jpg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":1586,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/world-autism-awareness-week-2019\/","url_meta":{"origin":776,"position":1},"title":"World Autism Awareness Week 2019","author":"Claire Johnson","date":"April 1, 2019","format":false,"excerpt":"You may have heard the saying \u201cWhen you have met one person with autism, you have met one person with autism\u201d.\u00a0 This is certainly true, and through my work as a parent volunteer with the National Autistic Society, and by being a member of a charity called \u201cThrive\u201d I have\u2026","rel":"","context":"In "Events"","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1176,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/studying-a-phd-in-population-medicine-children-with-autism-spectrum-disorder-asd-and-sensory-processing-sp-difficulties\/","url_meta":{"origin":776,"position":2},"title":"Studying a PhD in Population Medicine: Children with Autism Spectrum Disorder (ASD) and Sensory Processing (SP) difficulties","author":"Eleni Glarou","date":"November 9, 2018","format":false,"excerpt":"Eleni Glarou is based in the Centre for Trials Research.\u00a0She won a competitive funded place for a PhD in Population Medicine: Understanding multi-party communication in therapy sessions for children with Autism Spectrum Disorder (ASD) and Sensory Processing (SP) difficulties: The value of\u00a0interaction analysis. 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