{"id":2656,"date":"2023-09-21T09:59:46","date_gmt":"2023-09-21T09:59:46","guid":{"rendered":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/?p=2656"},"modified":"2023-09-21T10:02:19","modified_gmt":"2023-09-21T10:02:19","slug":"global-immune-thrombocytopenia-itp-awareness-week-2023","status":"publish","type":"post","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/global-immune-thrombocytopenia-itp-awareness-week-2023\/","title":{"rendered":"Global Immune Thrombocytopenia (ITP) Awareness Week 2023"},"content":{"rendered":"<h2 style=\"font-weight: 400\">September 25-29th 2023 is Global ITP Awareness Week!<\/h2>\n<p style=\"font-weight: 400\">This specially designated week calls for individuals around the world to join together to promote public awareness of a rare autoimmune disease called <strong>immune thrombocytopenia (ITP).<\/strong> The theme for this year\u2019s Global ITP Awareness Week <strong>is Increasing Awareness to Improve Outcomes<\/strong> and we thank you in advance for helping us empower the global ITP patient community!<\/p>\n<p style=\"font-weight: 400\"><strong>Please mark your calendar and help us bring attention and understanding to this rare bleeding disorder throughout the week.<\/strong><\/p>\n<p style=\"font-weight: 400\"><strong>\u00a0<\/strong><strong>Also help us to make a splash on Sport Purple for Platelets on September 29<sup>th<\/sup>.<\/strong><\/p>\n<figure id=\"post-2662 media-2662\" class=\"image align-center\"><img decoding=\"async\" src=\"http:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/09\/ITP-Rare.png\" alt=\"\" \/><\/figure>\n<p style=\"font-weight: 400\">ITP affects 9.5 in 100,000 people. In ITP the immune system attacks important blood cells (platelets) essential for normal blood clotting, resulting in reduced numbers of platelets and putting patients at risk of bleeding, which can occur to varying degrees. Persistent ITP lasts 3-12 months; chronic ITP lasts over a year. Treatment practices vary between different nations and local treating hospital sites within individual nations.<\/p>\n<p style=\"font-weight: 400\">In the UK, patients with newly diagnosed disease are usually referred to haematology departments in \u00a0hospitals \u00a0for diagnosis, treatment (if needed), monitoring and follow up. For patients needing treatment, \u00a0a course of corticosteroids (steroids \u2013 a man-made version of a hormone the body makes naturally) is usually recommended as the initial (first line) treatment.<\/p>\n<p style=\"font-weight: 400\">Most of patients respond well to corticosteroids with a rise in platelet count, but improvements are usually temporary &#8211; in the majority of patients, the disease will return. Long-term use of these drugs can lead to side effects that can be serious and distressing to the patient, and some patients need further \u2018rescue\u2019 treatment or other medications or rarely an operation (splenectomy) to remove their spleen (an organ involved in the production and removal of blood cells).<\/p>\n<p style=\"font-weight: 400\">For more information about ITP, please visit the ITP International Alliance website: <a href=\"https:\/\/globalitp.org\/index.php\">Home (globalitp.org)<\/a><\/p>\n<p style=\"font-weight: 400\">The Centre for Trials Research (CTR) at Cardiff University, Wales, UK is increasing national and international capacity in ITP and other blood disorder research through delivery of well-designed clinical trials and studies; the RODEX study being a prime example.<\/p>\n<p style=\"font-weight: 400\">RODEX is an investigator-led commercially funded (Amgen) clinical trial developed and led by researchers at the Andalusian Public Foundation for Health Research Management of Seville (FISEVI), Spain through collaboration with the UK Chief Investigator Dr Charlotte Bradbury (Consultant Haematologist at University Hospitals Bristol and Weston NHS Trust <a href=\"https:\/\/www.bristol.ac.uk\/people\/person\/Charlotte-Bradbury-736612ef-3111-4e9b-a92a-7f0eaab5b3af\/\">Dr Charlotte Bradbury &#8211; Our People (bristol.ac.uk)<\/a> and Senior Lecturer in Haematology at the Faculty of Translational Health Sciences, University of Bristol <a href=\"https:\/\/www.uhbw.nhs.uk\/\">University Hospitals Bristol and Weston NHS Foundation Trust (UHBW NHS)<\/a>). The CTR is acting as the UK National Coordinator to support study delivery in England, Wales and Scotland.<\/p>\n<p style=\"font-weight: 400\">The trial aims to recruit 126 adult patients with newly diagnosed ITP; the objective being to find out if a two-drug combination of corticosteroids (dexamethasone) plus a medicine called romiplostim is better than dexamethasone alone in this patient group. The trial is already actively recruiting ITP patients in Spain and Italy and pending recruitment of the first UK participant in Autumn 2023. We hope that through this trial we can improve the outcome of future patients diagnosed with ITP.<\/p>\n<p style=\"font-weight: 400\">Watch this link for updates on study progress! <a href=\"https:\/\/www.cardiff.ac.uk\/centre-for-trials-research\/research\/studies-and-trials\">Studies and trials &#8211; Centre for Trials Research &#8211; Cardiff University<\/a><\/p>\n<p style=\"font-weight: 400\"><strong>Please share this article on social media using #ImprovingOutcomesForITP, #global4ITP or #ITPaware<\/strong><\/p>\n<p style=\"font-weight: 400\"><strong>Please download the Global ITP Awareness Logo to display in your local community or workplace to help us raise awareness of this important rare condition.<\/strong><\/p>\n<figure id=\"post-2657 media-2657\" class=\"image align-center\"><img decoding=\"async\" src=\"http:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/09\/GlobalITPAwarenessWeekLogo.png\" alt=\"\" \/><\/figure>\n<ul>\n<li style=\"font-weight: 400\"><u>by Jo Smith, Trial Manager\/Research Associate at the Centre for Trials Research, Cardiff, Wales, UK<\/u><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"September 25-29th 2023 is Global ITP Awareness Week! This specially designated week calls for individuals around the world to join together to promote public awareness of a rare autoimmune disease [&hellip;]","protected":false},"author":6998,"featured_media":2664,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[7],"tags":[],"class_list":["post-2656","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events"],"jetpack_publicize_connections":[],"jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p7dIou-GQ","jetpack-related-posts":[{"id":1210,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/flight-study-milestones-researching-immune-thrombocytopenia-itp\/","url_meta":{"origin":2656,"position":0},"title":"FLIGHT Study Milestones: Researching Immune Thrombocytopenia (ITP)","author":"Julie Pell","date":"November 22, 2018","format":false,"excerpt":"FLIGHT is a\u00a0multicentre randomised trial of First Line treatment pathways for newly diagnosed Immune Thrombocytopenia: Standard steroid treatment versus combined steroid and mycophenolate.\u00a0 Funded by the National Institute for Health Research (NIHR). Study background Immune Thrombocytopenia (ITP) is an illness that causes bruising and bleeding owing to a low platelet\u2026","rel":"","context":"In &quot;Infections&quot;","block_context":{"text":"Infections","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/infections\/"},"img":{"alt_text":"FLIGHT study is celebrating 5 milstones","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/11\/FLIGHT-study-is-celebrating-5-milstones.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/11\/FLIGHT-study-is-celebrating-5-milstones.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/11\/FLIGHT-study-is-celebrating-5-milstones.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/11\/FLIGHT-study-is-celebrating-5-milstones.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/11\/FLIGHT-study-is-celebrating-5-milstones.jpg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/11\/FLIGHT-study-is-celebrating-5-milstones.jpg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":2967,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/rheumatoid-arthritis-awareness-week-2024-socrates-proms-and-plan-heracles\/","url_meta":{"origin":2656,"position":1},"title":"Rheumatoid Arthritis Awareness Week 2024 \u2013 SOCRATES, PROMs and PLAN-HERACLES","author":"Timothy Pickles","date":"September 16, 2024","format":false,"excerpt":"It is Rheumatoid Arthritis Awareness Week this week (16th to 22nd September 2024), which is organised by the National Rheumatoid Arthritis Society (NRAS). Detail on this can be found here: https:\/\/nras.org.uk\/raaw-24\/ The theme of RA Awareness week 2024 is #STOPtheStereotype, which focusses on dispelling the frustrating stereotypes that surround this\u2026","rel":"","context":"In &quot;Events&quot;","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2024\/09\/SOCRATES.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":2714,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/world-amr-awareness-week-2023-the-centre-for-trials-research-i3-division\/","url_meta":{"origin":2656,"position":2},"title":"World AMR Awareness Week 2023: The Centre for Trials\u00a0Research\u00a0I3 Division","author":"Joanne Euden","date":"November 17, 2023","format":false,"excerpt":"World AMR Awareness Week: The Centre for Trials\u00a0Research\u00a0I3 Division highlight the research they do to improve diagnosis of infections to guide appropriate antibiotic use\u00a0and\u00a0reduce the spread of antimicrobial resistance. Background Antimicrobial Resistance (AMR) is an urgent global public health threat, whereby increasing numbers of bacteria are becoming resistant to commonly\u2026","rel":"","context":"In &quot;Events&quot;","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/11\/Antimicrobial-resistance.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/11\/Antimicrobial-resistance.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/11\/Antimicrobial-resistance.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/11\/Antimicrobial-resistance.png?resize=700%2C400&ssl=1 2x"},"classes":[]},{"id":2640,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/rheumatoid-arthritis-awareness-week-2023\/","url_meta":{"origin":2656,"position":3},"title":"Rheumatoid Arthritis Awareness Week 2023","author":"Timothy Pickles","date":"September 11, 2023","format":false,"excerpt":"It is Rheumatoid Arthritis Awareness Week this week (11th to 15th September 2023), which is organised by the National Rheumatoid Arthritis Society (NRAS). The theme of RA Awareness week 2023 is #RADrain \u2013 showing how day-to-day activities can drain your battery, and leave you unable to continue with more events\u2026","rel":"","context":"In &quot;Events&quot;","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/09\/RAAW-logo-2017-2-1.jpeg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/09\/RAAW-logo-2017-2-1.jpeg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/09\/RAAW-logo-2017-2-1.jpeg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/09\/RAAW-logo-2017-2-1.jpeg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/09\/RAAW-logo-2017-2-1.jpeg?resize=1050%2C600&ssl=1 3x"},"classes":[]},{"id":2594,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/enceph-ig-trial-the-challenges-of-running-a-rare-disease-trial\/","url_meta":{"origin":2656,"position":4},"title":"ENCEPH-IG Trial: The Challenges Of Running A Rare Disease Trial","author":"Paula Foscarini-Craggs","date":"June 19, 2023","format":false,"excerpt":"Autoimmune encephalitis is swelling of the brain caused by the immune system attacking the body in error. It can cause people to become confused, drowsy, exhibit changes in behaviour, and have seizures. It affects around 1 in 100,000 people per year in the UK and because of its rarity and\u2026","rel":"","context":"In &quot;inflammation and immunity&quot;","block_context":{"text":"inflammation and immunity","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/inflammation-and-immunity\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/06\/ENCEPH-IG.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":776,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/too-much-information-world-autism-awareness-week\/","url_meta":{"origin":2656,"position":5},"title":"Too Much Information:  World Autism Awareness Week","author":"Andrea Meek","date":"March 30, 2017","format":false,"excerpt":"Background This week (March 27th\u00a0- 2nd April 2017) is World Autism Awareness Week. Claire Johnson (Head of Quality Assurance and Regulatory Affairs\u2013 Centre for Trials Research at\u00a0Cardiff University) gave a very personal presentation to Centre for Trials Research colleagues on autism based on the Too Much Information film by the\u2026","rel":"","context":"In &quot;Events&quot;","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/03\/George-and-Claire.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/03\/George-and-Claire.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/03\/George-and-Claire.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/03\/George-and-Claire.jpg?resize=700%2C400&ssl=1 2x"},"classes":[]}],"meta_box":[],"jetpack_featured_media_url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/09\/Global-ITP-Awareness-Week.png","_links":{"self":[{"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/posts\/2656","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/users\/6998"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/comments?post=2656"}],"version-history":[{"count":2,"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/posts\/2656\/revisions"}],"predecessor-version":[{"id":2663,"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/posts\/2656\/revisions\/2663"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/media\/2664"}],"wp:attachment":[{"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/media?parent=2656"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/categories?post=2656"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-json\/wp\/v2\/tags?post=2656"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}