{"id":2626,"date":"2023-07-27T08:54:53","date_gmt":"2023-07-27T08:54:53","guid":{"rendered":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/?p=2626"},"modified":"2023-07-27T08:56:28","modified_gmt":"2023-07-27T08:56:28","slug":"overcoming-barriers-and-facilitators-to-including-care-home-residents-in-research-recommendations-for-researchers","status":"publish","type":"post","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/overcoming-barriers-and-facilitators-to-including-care-home-residents-in-research-recommendations-for-researchers\/","title":{"rendered":"Overcoming Barriers And Facilitators To Including Care Home Residents In Research \u2013 Recommendations For Researchers"},"content":{"rendered":"<h2 style=\"font-weight: 400\"><strong>Background<\/strong><\/h2>\n<p style=\"font-weight: 400\">With an ageing population, older adults will have more complex health and social care needs and many of these older adults will be living in care homes. Despite the growth in care home populations, care home residents are often excluded from research. This results in research evidence that may not be generalisable to those who could benefit from it the most. If research findings are to inform practice and benefit those receiving the resulting evidence-based care, research participants need to reflect the population to which the research is being applied.<\/p>\n<p style=\"font-weight: 400\">Whilst practical difficulties and ethical concerns are often thought to be reasons for the exclusion of care home residents in research, all people have the right to participate in research regardless of cognitive abilities or their place of residence.<\/p>\n<p style=\"font-weight: 400\">In order to enable greater research opportunities for care home residents, improve the evidence-based care they receive and their quality of life, the challenges to their inclusion need to be identified.<\/p>\n<h2 style=\"font-weight: 400\"><strong>What did we do?<\/strong><\/h2>\n<p style=\"font-weight: 400\">We conducted a scoping review of the available literature. From an initial 3934 identified articles, 90 reports were eligible for inclusion. A number of recurring barriers and facilitators to the inclusion of care home residents in research were reported. However, isolating resident-related barriers was complex as both direct and indirect factors must be considered as influential as to not over-simplify the interactions.<\/p>\n<p style=\"font-weight: 400\">The barriers and facilitators identified from the included articles were synthesised into 7 themes and related subthemes:<\/p>\n<ol>\n<li>Research design<\/li>\n<li>Understanding and beliefs about research (resident and care home staff)<\/li>\n<li>Communication<\/li>\n<li>Relationships<\/li>\n<li>Eligibility criteria (resident and care home)<\/li>\n<li>Preference-based decisions<\/li>\n<li>Care home staff and environment.<\/li>\n<\/ol>\n<h2 style=\"font-weight: 400\"><strong>Recommendations for researchers<\/strong><\/h2>\n<p style=\"font-weight: 400\">Understanding the barriers and facilitators to the inclusion of older people living in care homes will enable these factors to be addressed and increase the evidence-base for care provided to older people living in care homes.<\/p>\n<p style=\"font-weight: 400\">From our findings we were able to develop a number of recommendations for researchers:<\/p>\n<figure id=\"post-2628 media-2628\" class=\"image align-center\"><img decoding=\"async\" src=\"http:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/07\/Brittany-blog.png\" alt=\"\" \/><\/figure>\n<p style=\"font-weight: 400\"><a href=\"http:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/07\/ENGAGE-Study-infographic.pdf\">ENGAGE Study infographic PDF<\/a><\/p>\n<p style=\"font-weight: 400\">If you would like to read more about our review, you can access it here: <a href=\"https:\/\/bmcgeriatr.biomedcentral.com\/articles\/10.1186\/s12877-023-04126-3\">https:\/\/bmcgeriatr.biomedcentral.com\/articles\/10.1186\/s12877-023-04126-3<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"Background With an ageing population, older adults will have more complex health and social care needs and many of these older adults will be living in care homes. Despite the [&hellip;]","protected":false},"author":6983,"featured_media":2628,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[7],"tags":[],"class_list":["post-2626","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events"],"jetpack_publicize_connections":[],"jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p7dIou-Gm","jetpack-related-posts":[{"id":2616,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/inclusive-opportunities-what-is-effective-public-involvement-in-care-home-research\/","url_meta":{"origin":2626,"position":0},"title":"Inclusive Opportunities: What Is Effective Public Involvement In Care Home Research?","author":"Tanisha Burgher","date":"July 10, 2023","format":false,"excerpt":"My journey into research As a final year medical student, I have witnessed my growth from being a layperson reading peer-reviewed articles to becoming a published author. This systematic review began in September 2021 as the dissertation for my intercalated BSc degree in Population Medicine which was supervised by Dr\u2026","rel":"","context":"In &quot;Events&quot;","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/07\/PPI-Diagram.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/07\/PPI-Diagram.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/07\/PPI-Diagram.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/07\/PPI-Diagram.png?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/07\/PPI-Diagram.png?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2023\/07\/PPI-Diagram.png?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":841,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/right-evidence-better-decisions-national-institute-of-health-research-dissemination-centre\/","url_meta":{"origin":2626,"position":1},"title":"Right Evidence, Better Decisions: National Institute of Health Research Dissemination Centre","author":"Victoria Shepherd","date":"July 19, 2017","format":false,"excerpt":"Background Earlier this month I was invited to attend an event at the Wellcome Collection in London being held to launch the latest themed review by the National Institute of Health Research Dissemination Centre. The Dissemination Centre help clinicians, commissioners and patients to make evidence-based decisions about which treatments and\u2026","rel":"","context":"In &quot;Events&quot;","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/07\/Wellcome_Building-scaled.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/07\/Wellcome_Building-scaled.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/07\/Wellcome_Building-scaled.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/07\/Wellcome_Building-scaled.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/07\/Wellcome_Building-scaled.jpg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2017\/07\/Wellcome_Building-scaled.jpg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":61,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/south-west-society-for-academic-primary-care-2016-annual-meeting\/","url_meta":{"origin":2626,"position":2},"title":"South West Society for Academic Primary Care 2016 Annual Meeting","author":"Richard Haggerty","date":"March 23, 2016","format":false,"excerpt":"The South East Wales Trials Unit (SEWTU) based in the Centre for Trials Research at Cardiff University recently co-hosted the South West Society for Academic Primary Care 2016 Annual Meeting along with colleagues in the Division of Population Medicine. The event brought\u00a0together over 160 experts and researchers in the field\u2026","rel":"","context":"In &quot;Children and Young People&quot;","block_context":{"text":"Children and Young People","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/children-and-young-people\/"},"img":{"alt_text":"Gwenllian Moody presenting on the challenge of collecting focus group data in partnership with geographically dispersed and time-pressed professionals.","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2016\/03\/SWSAPC-Gwen-scaled.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2016\/03\/SWSAPC-Gwen-scaled.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2016\/03\/SWSAPC-Gwen-scaled.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2016\/03\/SWSAPC-Gwen-scaled.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2016\/03\/SWSAPC-Gwen-scaled.jpg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2016\/03\/SWSAPC-Gwen-scaled.jpg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":1005,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/identifying-and-addressing-shared-challenges-in-conducting-health-and-social-care-research-for-older-people-opal\/","url_meta":{"origin":2626,"position":3},"title":"Identifying And Addressing Shared Challenges In Conducting Health And Social Care Research For Older People (OPAL)","author":"Victoria Shepherd","date":"June 18, 2018","format":false,"excerpt":"Background To The OPAL Programme The world\u2019s population is ageing: virtually every country in the world is experiencing growth in the number and proportion of older people in their population. The number of older people (aged 60 years or over) is expected to more than double by 2050 and to\u2026","rel":"","context":"In &quot;Events&quot;","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/06\/OPAL-group-photo.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/06\/OPAL-group-photo.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/06\/OPAL-group-photo.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/06\/OPAL-group-photo.png?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/06\/OPAL-group-photo.png?resize=1050%2C600&ssl=1 3x"},"classes":[]},{"id":1059,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/person-centred-care-in-care-homes-what-are-the-outcomes-that-matter\/","url_meta":{"origin":2626,"position":4},"title":"Person-Centred Care In Care Homes \u2013 What Are The Outcomes That Matter?\u00a0","author":"Victoria Shepherd","date":"July 9, 2018","format":false,"excerpt":"Person-Centred Care In Care Homes Person-centred care has become firmly embedded in care home settings, policies, and guidance over that last two decades. NICE guidelines promote integrated and person-centred approaches, inspection frameworks for older adults evaluate whether timely, appropriate person centred care has been delivered, and new social care legislation\u2026","rel":"","context":"In &quot;Events&quot;","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/07\/person-centred-care-visual-summary.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/07\/person-centred-care-visual-summary.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/07\/person-centred-care-visual-summary.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/07\/person-centred-care-visual-summary.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/07\/person-centred-care-visual-summary.jpg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2018\/07\/person-centred-care-visual-summary.jpg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":771,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/from-nhs-critical-care-nurse-to-nihr-researcher\/","url_meta":{"origin":2626,"position":5},"title":"From NHS Critical Care Nurse To NIHR Researcher","author":"Victoria Shepherd","date":"March 31, 2017","format":false,"excerpt":"Background I first became interested in how decisions are made for those who are unable to make their own decisions during my clinical role as a critical care nurse. 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