{"id":2222,"date":"2022-04-11T11:46:52","date_gmt":"2022-04-11T11:46:52","guid":{"rendered":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/?p=2222"},"modified":"2022-04-13T13:59:09","modified_gmt":"2022-04-13T13:59:09","slug":"hip-dysplasia-life-a-how-to-guide-for-surviving-and-thriving-with-hip-dysplasia-for-you-and-your-family","status":"publish","type":"post","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/hip-dysplasia-life-a-how-to-guide-for-surviving-and-thriving-with-hip-dysplasia-for-you-and-your-family\/","title":{"rendered":"Hip Dysplasia Life: A How-To Guide For Surviving And Thriving With Hip Dysplasia, For You And Your Family"},"content":{"rendered":"

The Get CreActive project explored the experiences of starting and staying physically active for 20 adults with hip dysplasia.\u00a0 Through exploring physical activity, the broader impact of hip dysplasia on all aspects of life emerged through discussion and an array of creative activities.<\/p>\n

The final aim of the Get CreActive project was to produce a peer support website to support people living with hip dysplasia and their families.\u00a0 In this final blog of the series, we present the resultant website.<\/p>\n

\"\"<\/figure>\n

www.hipdysplasialife.org<\/strong><\/a><\/p>\n

Throughout the Get CreActive project we \u2018captured\u2019 all our activities and by working with creative artists, had amassed an array of \u2018outputs\u2019 ripe for sharing with other people with hip dysplasia. We had 20 stunning digital stories, timelines, pieces of art, recordings of movement sessions, bize-size conversations with specialist health care professionals.\u00a0 Plenty to get started with.<\/p>\n

Mapping the core challenges and key learning shared by the group, a draft plan for a potential website was developed.\u00a0 Discussing key design features, look and \u2018feel\u2019, level of interactivity and long-term management the groups ideas fed into the website design, developed by web designer Dan Jones (iamDan).<\/p>\n

The site comprises of 6 key pages.\u00a0 Alongside the \u2018Home\u2019 page introducing the website with a friendly welcome for people with hip dysplasia and their family and friends, the site explores \u2018Diagnosis\u2019, Being physically active\u2019, \u2018Mind and Spirit\u2019 \u2013 thinking about how to enhance ones mental health and general wellbeing, \u2018Pre and post-surgery\u2019 – preparing for surgery and rehabilitating afterwards.<\/p>\n

\"\"<\/figure>\n

The digital stories \u2013 each with their own particular emphasis sit in their own \u2018our stories\u2019 page and are threaded through the site enabling viewers to hear directly from people with hip dysplasia all the way through.<\/p>\n

The site is populated with a range of blogs written by the group \u2013 providing support and information about topics such as \u2013 preparing for surgery, what to pack in your hospital bag and what you might need to think about if you\u2019re having to travel for surgery.\u00a0 \u2018Burning questions\u2019 asked of health care professions during the project feature in each section, displayed as short videos or audio recordings.\u00a0 A recording of the projects commissioned movement workshop by Jack Philp is displayed, enabling anyone to try out the workshop.<\/p>\n

\"\"<\/figure>\n

Throughout each key page, a series of \u2018top tips\u2019 are provided \u2013 key tips from the group about any given topic area.\u00a0 These feature heavily in physical activity sections where the group provide specific tips for getting involved with key physical activities that have worked for them.<\/p>\n

In peripheral areas of the website sits information about the Get CreActive project, the 10 research priorities developed as part of the project and a \u2018Join us\u2019 option for adults with hip dysplasia to sign up to receive information about studies about hip dysplasia they may want to take part in.\u00a0 In a final acknowledgements page, we pay tribute to our Get CreActive team member Tina Gambling, sadly lost to a short illness at the outset of the project.<\/p>\n

The Get CreActive website www.hipdysplasialife.org<\/a> is now live.\u00a0 Although it is the end point for the project, it is certainly not the end point for the group.\u00a0 With plans shaping up for hip dysplasia awareness month in June and our onward ambition to take what we have learned from this project into future research grants, the Get CreActive project will have a long-lasting legacy.<\/p>\n

Our thanks to the Get CreActive group for a wonderful 18 months and to the Wellcome Trust Institutional Strategic Support Fund for funding this fantastic project.<\/p>\n","protected":false},"excerpt":{"rendered":"The Get CreActive project explored the experiences of starting and staying physically active for 20 adults with hip dysplasia.\u00a0 Through exploring physical activity, the broader impact of hip dysplasia on […]","protected":false},"author":1568,"featured_media":2223,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[7],"tags":[],"class_list":["post-2222","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events"],"jetpack_publicize_connections":[],"jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p7dIou-zQ","jetpack-related-posts":[{"id":2217,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/setting-hip-dysplasia-research-priorities-for-the-future\/","url_meta":{"origin":2222,"position":0},"title":"Setting Hip Dysplasia Research Priorities For the Future","author":"Julie Latchem-Hastings","date":"April 11, 2022","format":false,"excerpt":"Between 2020-2022 Cardiff University researchers and scholars worked intensely with 20 adults with hip dysplasia to: Learn about their experiences of starting and staying physically active Set research priorities for future hip dysplasia research Create a peer support website Due to Covid-19, the project had largely been run online.\u00a0 You\u2026","rel":"","context":"In "Events"","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":2173,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/getting-creactive-part-2-digital-storytelling-and-visual-art\/","url_meta":{"origin":2222,"position":1},"title":"Getting CreActive \u2013 Part 2 \u2013 Digital Storytelling And Visual Art","author":"Julie Latchem-Hastings","date":"January 26, 2022","format":false,"excerpt":"Introduction In my last Get CreActive blog I focussed on the use of the creative arts to reframe relationships with physical activity.\u00a0 Physical activity is an important part of managing hip dysplasia but it can be challenging to be active, and trying new things can be anxiety filled. Through the\u2026","rel":"","context":"In "Events"","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/01\/Best-Possible-Future-Lena-Said-scaled.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/01\/Best-Possible-Future-Lena-Said-scaled.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/01\/Best-Possible-Future-Lena-Said-scaled.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/01\/Best-Possible-Future-Lena-Said-scaled.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/01\/Best-Possible-Future-Lena-Said-scaled.jpg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/01\/Best-Possible-Future-Lena-Said-scaled.jpg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":2058,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/get-creactive-for-hips-living-with-hip-dysplasia\/","url_meta":{"origin":2222,"position":2},"title":"Get CreActive for Hips \u2013 Living with Hip Dysplasia","author":"Julie Latchem-Hastings","date":"May 13, 2021","format":false,"excerpt":"Background Young adults with acetabular dysplasia (hip dysplasia), an orthopaedic condition of the hip, often undergo multiple surgeries and can experience chronic pain, insomnia and difficulties walking which effects both their physical and mental health. 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It is a general term for hip instability, dislocation, or shallowness of the hip socket. Hip instability and dislocation are more likely to occur in children, while a shallow socket which is stable is more\u2026","rel":"","context":"In "Events"","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":2156,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/getting-creactive\/","url_meta":{"origin":2222,"position":4},"title":"Getting CreActive","author":"Julie Latchem-Hastings","date":"January 5, 2022","format":false,"excerpt":"Getting CreActive \u2013 part 1 This blog explores the \u2018CreActive\u2019 part of the Get CreActive project \u2013 a year-long exploration of the experiences of adults with hip dysplasia. 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