{"id":2104,"date":"2021-07-28T14:30:54","date_gmt":"2021-07-28T14:30:54","guid":{"rendered":"http:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/?p=2104"},"modified":"2022-04-13T13:59:09","modified_gmt":"2022-04-13T13:59:09","slug":"youre-cast-away-on-a-desert-island-and-exploring-physical-activity-experiences-with-adults-with-hip-dysplasia","status":"publish","type":"post","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/youre-cast-away-on-a-desert-island-and-exploring-physical-activity-experiences-with-adults-with-hip-dysplasia\/","title":{"rendered":"You\u2019re cast away on a desert island and \u2026.. \u2013 exploring physical activity experiences with adults with hip dysplasia"},"content":{"rendered":"\n

\u201cYou\u2019re cast away on a desert island and \u2026..\u201d<\/h2>\n\n\n\n

When my office mate and experienced qualitative researcher Dr Kim Smallman suggested we used a \u2018castaway\u2019 style elicitation activity\/task in our Get CreActive sessions to explore physical activity I thought it sounded fun but was very unsure about how the group we were working with would respond to it and what it would yield.<\/p>\n\n\n\n

The project had started with another of Kim\u2019s ideas \u2013 encouraging each member of the project to draw a timeline which represented their experience of hip dysplasia.\u00a0\u00a0The timelines were about giving participants a map to speak to when first meeting this group of friendly strangers.\u00a0\u00a0In my previous blog<\/a> that activity sparked a deep and detailed sharing of experience \u2013 showing us and everyone taking part, the variety in their journeys but also the extraordinary similarities between their stories.<\/p>\n\n\n\n

Get CreActive group<\/h2>\n\n\n\n

The Get CreActive group vary in age from early 20\u2019s to 60. Some were diagnosed with hip dysplasia as young children, some only recently diagnosed in their 20\u2019s and some not diagnosed until their 40\u2019s.  They are all at different stages of pre and post-surgical interventions with some having their first surgeries now, some having further rounds of surgery to come, some who had surgeries long ago and some, for whom surgeries were decided against. <\/p>\n\n\n\n

Having met each of the group and listened to the trials, tribulations and triumphs of their individual lives, our first collective task was to encourage the group to think and talk about being (and trying to be) physically active with hip dysplasia.  The project has a physical activity focus and we wanted to know what this group had found worked for them (and what didn\u2019t).<\/p>\n\n\n\n

Given this range and the variety of experiences within the group I anticipated a tangled mesh of responses that would feel like treacle to wade through and would be challenging to say the least, to pull together.  But instead – it went like this:<\/p>\n\n\n\n

The group is meeting in a purely digital space.  Covid has made it that way but it\u2019s far from the sterile and impersonal environment I hear so many people complain about.  It\u2019s pretty much the opposite \u2013 it\u2019s packed with emotion, it\u2019s sensitive and warm.  Together, we\u2019ve built a space and sense of real community and we\u2019ve done it quickly.  Having shared mini life stories last session and started this one talking about challenges, facilitators, barriers and hopes and ambitions \u2013 we do need a bit of light relief.  I pose Kim\u2019s castaway elicitations:<\/p>\n\n\n\n

Castaway<\/h2>\n\n\n\n

\u201cYou\u2019re cast away on a desert island and you can only take\u00a02 items of physical activity equipment,\u00a02 exercises\/physical activities,\u00a01 piece of wisdom\/knowledge\/understanding about hip dysplasia and physical activity, 2 soundtracks and 1 luxury item\u201d<\/em><\/p>\n\n\n\n

\"\"
Palm tree desert island photo by Maarten van den Heuvel on Unsplash <\/figcaption><\/figure><\/div>\n\n\n\n

We start with the \u2018two pieces of physical activity equipment\u2019.  The chat box quickly comes alive as the group pile in their responses in amongst a bit of open chatter.  <\/p>\n\n\n\n

Resistance bands! A spin bike. My swim suit. A yoga mat. My bike with solid tyres and my turbo trainer! A gymball\u2026..<\/em>the list goes on.<\/p>\n\n\n\n

Although the odd bit of variety creeps in in places \u2013 \u2018my hockey stick\u2019, \u2018boxing gloves\u2019 \u2013 in the main the equipment choices fall easily into three categories:

1. Water-based activities
2. Resistance exercise\/strength training
3. Cycling.<\/p>\n\n\n\n

\"\"
Swimming photo by Efe Kurnaz on Unsplash <\/figcaption><\/figure><\/div>\n\n\n\n

A similar thing happens when we move to \u2018two exercises\/physical activities\u2019 \u2013 \u2018swimming\/aqua aerobics and Pilates\u2019, \u2018swimming and strengthening exercises\u2019, \u2018yoga\u2019, \u2018plank for core and squats\u2019, \u2018cycling\u2019.\u00a0\u00a0Again, the choices fall into three categories:

1. Water-based activities
2. Strength training
3. Cycling.\u00a0\u00a0I\u2019m stunned that there are such evident preferences.<\/p>\n\n\n\n

As we talk more about these activities and exercises the group have a clear understanding that keeping their core and hip muscles strong is key to their function and pain management.\u00a0\u00a0How they go about that seems to depend on how they can best exercise pain free (or largely pain free).\u00a0\u00a0For most of them water features in that with on or in the water activities working well and the soothing, therapeutic nature of water coming to the fore.\u00a0\u00a0Most, if not all of the group, engage in some form of strengthening activity \u2013 often using resistance bands, resistance of water or body-weight exercises through activities such as Yoga or Pilates. The group are also largely, big fans of cycling.\u00a0\u00a0Lots of them find cycling helpful, freeing \u2013 and often much easier than running. The cyclists are on it immediately and are setting cycling meet ups on Strava.\u00a0<\/p>\n\n\n\n

Knowledge and Wisdom<\/h2>\n\n\n\n

So what about their knowledge and wisdom?<\/strong>\u00a0\u00a0Again the chat box is quickly filled as the group offer a wealth of thoughts.\u00a0\u00a0Given their choices above, it\u2019s clear that their lived experience has taught them much \u2013 and now, unsurprisingly,\u00a0comments pour out which closely reflect core rehabilitative principles.\u00a0\u00a0<\/p>\n\n\n\n

Pacing activities<\/h2>\n\n\n\n

Their pearls of wisdom start with clear messages of individuality and a need to pace activities – \u201cIt’s your journey at your pace, forward is forward its not a race!!\u201d, <\/em>\u201cBuild up new activities slowly and pace yourself\u201d, <\/em>\u201cTake it one day at a time\u201d<\/em>and the consequence of not pacing being made clear \u2013 \u201cPace yourself – just because it doesn’t hurt now doesn’t mean you won’t be in agony later!\u201d  <\/em>There was also recognition that sometimes taking a break is needed too \u2013 \u201cit’s okay to take a break sometimes from rehab, as long as you get back to it, and just not overly stressing about it.\u201d<\/em><\/p>\n\n\n\n

Their advice also mirrors the ups and downs of a life with hip dysplasia \u2013 dealing with constant change and the reset surgery brings and the commencement of another period of rehabilitation \u2013 \u201cSlowly slowly reintroduction of exercise, and learning to accept your new baseline to progress from.\u201d<\/em><\/p>\n\n\n\n

Listening to your body<\/h2>\n\n\n\n

Knowing and listening to your body to help guide pacing was also a clear message from the group \u2013 \u201cKnow your own boundaries and when to stop\u201d, <\/em>\u201cKnowing when my hip pain is because I have done too little, too much exercise or I just need to stretch\u201d <\/em>and was followed by more specific advice encouraging focus on the form (quality and accuracy) of activities and their intensity \u2013 \u201cQuality of exercises rather than quantity\u201d, <\/em>\u201cLess is sometimes more, but being consistent is everything\u201d.<\/em><\/p>\n\n\n\n

With the group already establishing in previous session that pain could and had played such a large part in their decision making for surgery, their abilities and inability to engage with activity \u2013 encouragement was also offered about the possibility of finding pain free activities \u201cYou can find a way to build\/maintain hip which doesn\u2019t cause pain\u201d.<\/em><\/p>\n\n\n\n

Activity and effort<\/h2>\n\n\n\n

Despite challenges faced however there was also clear recognition that activity and efforts made to exercise made a difference \u2013 \u201cMovement and exercise is important even if you don’t want to do it – the gain in mobility, strength and independence will be worth it.\u201d<\/em><\/p>\n\n\n\n

Looking at this range of advice \u2013 as a physiotherapist, it\u2019s the type of knowledge and understanding that you work towards instilling in every patient rehabilitating or seeking to maintain their function.  This advice is \u2018spot on\u2019.<\/p>\n\n\n\n

To complete the session we asked our final questions – for their selection of songs and luxury items.  Their music choices reflected their personality, represented key points in time, stories of special moments and often reflected major triumphs.  To deepen our connection with one another we then built a project playlist and have used that throughout the project in a variety of ways.<\/p>\n\n\n\n

Luxury item choices brought much welcomed humour to the proceedings and again taught us much about one another.  The list featured choices of chocolate and dressing gowns to dogs and husbands!<\/p>\n\n\n\n

Consistency and Similarities<\/h2>\n\n\n\n

These activities drew out surprising consistency and similarities around physical activity preferences.\u00a0\u00a0Their choices and words of wisdom demonstrated an embodied understanding of rehabilitative and training principles \u2013 all of which are now ripe for sharing in a bid to support other people with hip dysplasia.\u00a0\u00a0Now in the final stretch of the Get CreActive project we are developing a website to do just that, with a launch planned for late autumn.\u00a0\u00a0In the meantime however, there are more stories to tell.\u00a0\u00a0Look out for my forthcoming blogs on digital storytelling and getting \u2018CreActive\u2019.<\/p>\n","protected":false},"excerpt":{"rendered":"\u201cYou\u2019re cast away on a desert island and \u2026..\u201d When my office mate and experienced qualitative researcher Dr Kim Smallman suggested we used a \u2018castaway\u2019 style elicitation activity\/task in our […]","protected":false},"author":1568,"featured_media":2105,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[7],"tags":[],"class_list":["post-2104","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events"],"jetpack_publicize_connections":[],"jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p7dIou-xW","jetpack-related-posts":[{"id":2217,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/setting-hip-dysplasia-research-priorities-for-the-future\/","url_meta":{"origin":2104,"position":0},"title":"Setting Hip Dysplasia Research Priorities For the Future","author":"Julie Latchem-Hastings","date":"April 11, 2022","format":false,"excerpt":"Between 2020-2022 Cardiff University researchers and scholars worked intensely with 20 adults with hip dysplasia to: Learn about their experiences of starting and staying physically active Set research priorities for future hip dysplasia research Create a peer support website Due to Covid-19, the project had largely been run online.\u00a0 You\u2026","rel":"","context":"In "Events"","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/CreActive-blog-1-scaled.jpg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":2222,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/hip-dysplasia-life-a-how-to-guide-for-surviving-and-thriving-with-hip-dysplasia-for-you-and-your-family\/","url_meta":{"origin":2104,"position":1},"title":"Hip Dysplasia Life: A How-To Guide For Surviving And Thriving With Hip Dysplasia, For You And Your Family","author":"Julie Latchem-Hastings","date":"April 11, 2022","format":false,"excerpt":"The Get CreActive project explored the experiences of starting and staying physically active for 20 adults with hip dysplasia.\u00a0 Through exploring physical activity, the broader impact of hip dysplasia on all aspects of life emerged through discussion and an array of creative activities. The final aim of the Get CreActive\u2026","rel":"","context":"In "Events"","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/Screenshot-2022-03-23-at-21.22.58.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/Screenshot-2022-03-23-at-21.22.58.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/Screenshot-2022-03-23-at-21.22.58.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/Screenshot-2022-03-23-at-21.22.58.png?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/Screenshot-2022-03-23-at-21.22.58.png?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2022\/04\/Screenshot-2022-03-23-at-21.22.58.png?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":2156,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/getting-creactive\/","url_meta":{"origin":2104,"position":2},"title":"Getting CreActive","author":"Julie Latchem-Hastings","date":"January 5, 2022","format":false,"excerpt":"Getting CreActive \u2013 part 1 This blog explores the \u2018CreActive\u2019 part of the Get CreActive project \u2013 a year-long exploration of the experiences of adults with hip dysplasia. Blog 1 in this series provided a background to hip dysplasia and the aims of the Get CreActive project. 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It is a general term for hip instability, dislocation, or shallowness of the hip socket. Hip instability and dislocation are more likely to occur in children, while a shallow socket which is stable is more\u2026","rel":"","context":"In "Events"","block_context":{"text":"Events","link":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/blogs.cardiff.ac.uk\/centre-for-trials-research\/wp-content\/uploads\/sites\/499\/2021\/02\/Hip-Dysplasia-Normal-vs-Shallow-Sockets.png?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":2173,"url":"https:\/\/blogs.cardiff.ac.uk\/centre-for-trials-research\/getting-creactive-part-2-digital-storytelling-and-visual-art\/","url_meta":{"origin":2104,"position":5},"title":"Getting CreActive \u2013 Part 2 \u2013 Digital Storytelling And Visual Art","author":"Julie Latchem-Hastings","date":"January 26, 2022","format":false,"excerpt":"Introduction In my last Get CreActive blog I focussed on the use of the creative arts to reframe relationships with physical activity.\u00a0 Physical activity is an important part of managing hip dysplasia but it can be challenging to be active, and trying new things can be anxiety filled. 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