Patient and Public Involvement

NIHR Fellowship Project Exploring Research Involving Adults Lacking Capacity To Consent – Our Public And Patient Involvement Journey

Posted on 28 October 2019 by Victoria Shepherd

Project exploring research involving adults who lack capacity to consent For the past 3 years I have been conducting a project exploring the ethical, legal, and practical challenges that may be encountered when involving people with impaired capacity in research. The project, titled ‘Informed consent and proxy decision making in research involving adults lacking capacity:
Read more


RDCS Annual Event 2016: Increasing Research Capacity in Wales

Posted on 20 October 2016 by Mark Kelson

The Research Design and Conduct Service (RDCS) South East Wales held its annual showcase event recently. This is our longest running event, now in its sixth year, and it has been oversubscribed every time. In recent years, it has focused on the upcoming Research for Public and Patient Benefit (RfPPB) call. “This is the study
Read more


How Public Involvement Informed and Guided the EDDY Study

Posted on 23 February 2016 by Julia Townson

Stephen Thomas, Sarah Earle-Jones and Julia Townson were asked to present the Early Detection of type 1 Diabetes in Youth (EDDY) study at the Health and Care Research Wales Involving People Network meeting on 1 February 2016. The aim of the presentation was to show how Involving People network members had been involved with researchers and how public involvement
Read more