Healthcare Professionals

We advocate early intervention based on ongoing research results and have recently developed a briefing document for physiotherapists working with people with Huntington’s Disease.. This is endorsed by the Chartered Society of Physiotherapy, the Association of Chartered Physiotherapists Interested in Neurology and the Huntington’s Disease Association of England and Wales.

EHDN Working Group 2

Cardiff researchers work closely with the European Huntington’s Disease Network (EHDN) Physiotherapy Working Group, an international network of physiotherapists working in a variety of settings with People with Huntington’s Disease. The group was established by Lori Quinn and Monica Busse, with the support of EHDN, in 2008.  The original EHDN physiotherapy guidance document was produced in 2009 with the  updated Clinical Guidelines following in 2012.

More recently, the group developed Physiotherapy Tips and are now working on a learning resource for HD families and carers.

 You can access many of these documents here.

Clinical Guidelines (Summary)

Download Huntington’s Disease Physiotherapy Clinical Guidelines (pdf)

Physiotherapy Tips

Download Footwear and Orthotics Document (pdf)

Download Moving and Handling (pdf)

Download Physical Activity and Exercise Document (pdf)

Download Seating and Positioning Document (pdf)

Download Walking and Walking Aids Document (pdf)

Full Physiotherapy Guidance

Download Full Physiotherapy Guidance Document (pdf)