Huntington’s Disease

Dr. Emma Yhnell presenting her research on cognitive training at the EHDN plenary meeting.

The European Huntington’s Disease Network Plenary Meeting 2016

Posted on 3rd October 2016 by

On the 15th September 2016, over 900 people from 42 different countries met in The Hague for the 9th European Huntington’s Disease Network (EHDN) Plenary Meeting. The event brought together clinicians, health care professionals, researchers and families affected by Huntington’s disease. What is Huntington’s disease? Huntington’s disease is a brain disorder which gets progressively worse
Read more


Prof. Monica Busse presents results from the Exert-HD trial - positive effects of exercise in HD.

Physical Activity in Huntington’s Disease #EHDN2016

Posted on 2nd October 2016 by

In September 2016, the 9th European Huntington’s Disease Network (EHDN) plenary meeting 2016 took place at The Hague in the Netherlands. Clinicians, scientists, researchers, HD patients and families travelled from all over the world to gather for four days of meetings, presentations, posters and networking. With over 900 attendees, EHDN 2016 provided a fantastic platform
Read more


Outside-walk-1024x751

Developing Self-Sustaining Walking Groups for People with Huntington’s Disease

Posted on 20th July 2016 by

A newly-funded project seeks to empower people with Huntington’s disease to become stakeholders in their own walking groups as a way to maintain the benefits of exercise. Dr Una Jones; Katy Hamana; Professor Monica Busse; Dr Melanie Jones; Kay Holmes; Dr Sonia Vougioukalou; Professor Anne E Rosser Background Previous research by the Huntington’s disease (HD) Physiotherapy group at Cardiff
Read more



shutterstock_111003710-1024x683

Supporting Activity Engagement in People with Huntington’s Disease: A Phase II Evaluation

Posted on 25th June 2016 by

Dr Monica Busse; Dr Lori Quinn, Professor Anne Rosser, Professor Helen Dawes,Professor Kerry Hood Funded by the National Institute of Social Care and Health Research (NISCHR) in Wales We know that keeping active (both physically and socially) is important for any person who suffers with a chronic health condition. This can become very difficult for
Read more


Active-HD-logo wide 2

Huntington’s Disease Physiotherapy Briefing

Posted on 24th June 2016 by

Early physiotherapy intervention plays a key role in management of Huntington’s disease (HD) over the life cycle of the disease. What is Huntington’s disease? HD is an inherited neurodegenerative disease for which there is no cure. Children of an affected individual have a 50/50 chance of inheriting the faulty HD gene. The mutation results in
Read more


LOGO_REPAIR-HD

Repair-HD

Posted on 23rd June 2016 by

Repair-HD proposes to establish all the components necessary to take human pluripotent stem cell-derived neuronal cells through to the point of ‘first-in-man’ clinical trial in Huntington’s disease (HD). The concept is to use HD as a ‘model’ disease to test the principle that an in vitro differentiated stem cell product can yield clinically useful structural
Read more


NC046232-1024x1005

Exercise Rehabilitation Trial in Huntington’s Disease

Posted on 20th June 2016 by

Dr Lori Quinn, Professor Monica Busse, Professor Helen Dawes, Professor Anne Rosser, Dr Andrea Nemeth, Dr Ralf Reilmann, Dr Hugh Rickards, Dr Raymund Roos, Ms Julia Townson, Dr Mark Kelson. Study Coordinator: Mrs Katy Hamana This single blind, exploratory phase II randomised, multi-site trial aimed to evaluate the feasibility and benefit of an intensive, structured
Read more